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Support Groups & Advocacy
After the person with ALS has died, support groups may be helpful to you. Support groups at this stage should address what happens next, how to develop another “new normal,” and overall dealing with the loss and changes. At this point support groups should be less focused on the details of the disease and more targeted on supporting you and your family. If you think a group would be good for you, check in with your local ALS Association chapter. They may have a group or may be interested in starting one.